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	<title>proofonline.org &#187; Personal</title>
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	<link>http://www.proofonline.org/blog</link>
	<description>mental health blog</description>
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		<title>&#8216;Bootstraps&#8217; and the Perpetuation of Illness</title>
		<link>http://www.proofonline.org/blog/2010/01/15/bootstraps-and-the-perpetuation-of-illness/</link>
		<comments>http://www.proofonline.org/blog/2010/01/15/bootstraps-and-the-perpetuation-of-illness/#comments</comments>
		<pubDate>Fri, 15 Jan 2010 18:45:12 +0000</pubDate>
		<dc:creator>Douglas Faneuil</dc:creator>
				<category><![CDATA[Analysis]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Personal]]></category>
		<category><![CDATA[Culture]]></category>
		<category><![CDATA[Loneliness]]></category>
		<category><![CDATA[Philosophy]]></category>
		<category><![CDATA[Religion]]></category>
		<category><![CDATA[Sanity]]></category>
		<category><![CDATA[Schizophrenia]]></category>
		<category><![CDATA[Stigma]]></category>
		<category><![CDATA[Suicide]]></category>

		<guid isPermaLink="false">http://www.proofonline.org/blog/?p=358</guid>
		<description><![CDATA[Rigid individualism as an obstacle to health.]]></description>
			<content:encoded><![CDATA[<p>&#8220;Pick yourself up by your bootstraps.&#8221; This isn&#8217;t just a clichéd bit of advice. Here in America, it&#8217;s a creed – a distillation of our cult of the individual. Nearly all our heroes, from Davy Crockett to <em>The Matrix</em>&#8217;s Neo, from Abraham Lincoln to Chesley &#8220;Sully&#8221; Sullenberger, come in the size and shape we prefer: the salt-of-the-earth, against-the-grain individual who, despite poor odds, manages to single-handedly transform a time and place for the better. It may take a village to raise a child, but a true hero goes it alone.</p>
<p>We&#8217;ve built an impressive civilization around the primacy of individual agency. Our near-worship of human potential, and its attendants hard work and self-sacrifice, has given us everything from the light bulb to the internet. It is safe to say that in the last two-hundred years Americans have contributed more to the advancement of knowledge than most other people. We are a nation of hard workers hoping to become heroes. We persevere.</p>
<p>The ideology of individualism is a useful one, a beneficial one. But it&#8217;s not entirely true or always helpful. &#8220;Behind every good man is a good woman.&#8221; &#8220;It takes a village to raise a child.&#8221; These are aphorisms that pay lip service to the shortcomings of our individualist bent. And if this myth of personal agency – that if you look deep within yourself you can conquer anything – is not entirely true, then where exactly does this conviction clash with reality? Where does this belief system fail us the most? In the realm of mental illness.</p>
<p>A few days ago the <a href="http://www.nytimes.com/" target="_blank">New York Times</a> ran a <a title="New York Times" href="http://www.nytimes.com/2010/01/10/magazine/10psyche-t.html?scp=1&amp;sq=Americanization%20of%20illness&amp;st=cse" target="_blank">brilliant piece</a> about how we&#8217;re exporting our &#8220;symptom repertoire&#8221; to the world, about how disparate cultures have begun to adopt our uniquely American expressions of mental anguish.</p>
<blockquote><p>NOWHERE ARE THE limitations of Western ideas and treatments more evident than in the case of schizophrenia. Researchers have long sought to understand what may be the most perplexing finding in the cross-cultural study of mental illness: people with schizophrenia in developing countries appear to fare better over time than those living in industrialized nations&#8230;</p>
<p>Trying to unravel this mystery, the anthropologist Juli McGruder from the University of Puget Sound spent years in Zanzibar studying families of schizophrenics. Though the population is predominantly Muslim, Swahili spirit-possession beliefs are still prevalent in the archipelago and commonly evoked to explain the actions of anyone violating social norms — from a sister lashing out at her brother to someone beset by psychotic delusions.</p>
<p>McGruder found that far from being stigmatizing, these beliefs served certain useful functions. The beliefs prescribed a variety of socially accepted interventions and ministrations that kept the ill person bound to the family and kinship group. “Muslim and Swahili spirits are not exorcised in the Christian sense of casting out demons,” McGruder determined. “Rather they are coaxed with food and goods, feted with song and dance. They are placated, settled, reduced in malfeasance.” McGruder saw this approach in many small acts of kindness. She watched family members use saffron paste to write phrases from the Koran on the rims of drinking bowls so the ill person could literally imbibe the holy words. The spirit-possession beliefs had other unexpected benefits. Critically, the story allowed the person with schizophrenia a cleaner bill of health when the illness went into remission. An ill individual enjoying a time of relative mental health could, at least temporarily, retake his or her responsibilities in the kinship group. Since the illness was seen as the work of outside forces, it was understood as an affliction for the sufferer but not as an identity.</p>
<p>For McGruder, the point was not that these practices or beliefs were effective in curing schizophrenia. Rather, she said she believed that they indirectly helped control the course of the illness. Besides keeping the sick individual in the social group, the religious beliefs in Zanzibar also allowed for a type of calmness and acquiescence in the face of the illness that she had rarely witnessed in the West.</p></blockquote>
<p>Mental illness is more of a crisis in America because we&#8217;re expected to take care of ourselves so completely. When we can&#8217;t – when our feelings overwhelm us to the point of breakdown – we have <em>failed</em> as individuals. And seeing illness as a personal failure doesn&#8217;t just suck; it&#8217;s a burden that can be fatal.</p>
<p>My sister was a casualty. An incredibly bright and hard-working businesswoman, she prided herself on managing a very busy schedule. She wanted a lot from life, but more than anything else she wanted to be &#8220;a success:&#8221; she wanted to buy her own car, live in her own house, run her own company, and raise a family, too. Independence with a capital &#8220;I.&#8221; (She loathed expectations of femininity. When we were kids I told her that I&#8217;d never heard a girl fart. From then on, she made a point of doing so in my presence – loudly.) By any measure, she gained the life she craved. But when illness struck, she was horrified, not so much by her feelings, but by her inability to master them, her inability to take care of herself. She wanted desperately to be independent. And quite suddenly, she couldn&#8217;t be.</p>
<p>More from the Times article:</p>
<blockquote><p>The course of a metastasizing cancer is unlikely to be changed by how we talk about it. With schizophrenia, however, symptoms are inevitably entangled in a person’s complex interactions with those around him or her. In fact, researchers have long documented how certain emotional reactions from family members correlate with higher relapse rates for people who have a diagnosis of schizophrenia. Collectively referred to as “high expressed emotion,” these reactions include criticism, hostility and emotional overinvolvement (like overprotectiveness or constant intrusiveness in the patient’s life). In one study, 67 percent of white American families with a schizophrenic family member were rated as “high EE.” (Among British families, 48 percent were high EE; among Mexican families the figure was 41 percent and for Indian families 23 percent.)</p>
<p>Does this high level of “expressed emotion” in the United States mean that we lack sympathy or the desire to care for our mentally ill? Quite the opposite. Relatives who were “high EE” were simply expressing a particularly American view of the self. <strong>They tended to believe that individuals are the captains of their own destiny and should be able to overcome their problems by force of personal will</strong> [my emphasis]. Their critical comments to the mentally ill person didn’t mean that these family members were cruel or uncaring; they were simply applying the same assumptions about human nature that they applied to themselves. They were reflecting an “approach to the world that is active, resourceful and that emphasizes personal accountability,” Prof. Jill M. Hooley of Harvard University concluded. “Far from high criticism reflecting something negative about the family members of patients with schizophrenia, high criticism (and hence high EE) was associated with a characteristic that is widely regarded as positive.”</p>
<p>Widely regarded as positive, that is, in the United States. Many traditional cultures regard the self in different terms — as inseparable from your role in your kinship group, intertwined with the story of your ancestry and permeable to the spirit world. What McGruder found in Zanzibar was that families often drew strength from this more connected and less isolating idea of human nature. Their ability to maintain a low level of expressed emotion relied on these beliefs. And that level of expressed emotion in turn may be key to improving the fortunes of the schizophrenia sufferer.</p></blockquote>
<p>My sister killed herself in 1999, just before the new millennium. She would have turned 37 last week, on January 10th. I can think of no one more independent and more responsible than she. She constantly goaded me into pushing myself to do more. &#8220;No one else is going to do it for you,&#8221; she used to say.</p>
<p>This is the dark side of American Individualism: those in need of help are loathe to seek it. This concept of Expressed Emotion, or EE, doesn&#8217;t just apply to the community; it applies to the subject as well. If friends and family are highly critical – if they are unsupportive of a person in breakdown – it&#8217;s likely the person has internalized that kind of thinking. My sister was probably the most &#8220;EE&#8221; of anyone in the family. In other words, nobody was harder on her than herself. Not surprisingly, this had a lot to do with how determined she was to persevere.</p>
<p>She could have used a little humility. Can&#8217;t we all.</p>
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		<title>&#8216;The Battlefield That&#8217;s Inside Your Mind&#8217;</title>
		<link>http://www.proofonline.org/blog/2009/12/27/the-battlefield-thats-inside-your-mind/</link>
		<comments>http://www.proofonline.org/blog/2009/12/27/the-battlefield-thats-inside-your-mind/#comments</comments>
		<pubDate>Sun, 27 Dec 2009 17:29:57 +0000</pubDate>
		<dc:creator>Douglas Faneuil</dc:creator>
				<category><![CDATA[Culture]]></category>
		<category><![CDATA[Personal]]></category>
		<category><![CDATA[Bipolar]]></category>
		<category><![CDATA[Depression]]></category>
		<category><![CDATA[Happiness]]></category>
		<category><![CDATA[Loneliness]]></category>
		<category><![CDATA[Sanity]]></category>
		<category><![CDATA[Stigma]]></category>
		<category><![CDATA[Suicide]]></category>

		<guid isPermaLink="false">http://www.proofonline.org/blog/?p=324</guid>
		<description><![CDATA[A short video about surviving depression during the season of gratitude.]]></description>
			<content:encoded><![CDATA[<p><a href="http://www.proofonline.org/blog/wp-content/uploads/2009/08/Quote.jpg"><img class="alignnone size-full wp-image-138" title="Quote" src="http://www.proofonline.org/blog/wp-content/uploads/2009/08/Quote.jpg" alt="Quote" width="80" height="63" /></a> I know that I have to be extra vigil around the holidays and protect myself in a technique [that] I call SEE, which is to sleep (sleep hygiene), eat good, and exercise. Sleep hygiene means going to bed at the same time each night and waking up at the same time in the morning&#8230;</p>
<p>And sometimes when I&#8217;m feeling kind of overwhelmed by &#8216;the battlefield,&#8217; I will just sort of stay away from the artificial situations and get back to my closer friends who really get what&#8217;s going on in my psyche.&#8221;</p>
<p><object classid="clsid:d27cdb6e-ae6d-11cf-96b8-444553540000" width="640" height="385" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"><param name="bgcolor" value="#ffffff" /><param name="flashvars" value="file=http://s3.amazonaws.com/silo.grou.ps/wysiwyg_files/Videos/sharewik/20091211193737-bsuluxjlglgrplnkl.flv&amp;image=http://grou.ps/wysiwyg_files/Videos/sharewik/20091211193737-bsuluxjlglgrplnkl-big.jpg&amp;link=http://www.sharewik.com/videos/808795&amp;backcolor=000000&amp;frontcolor=cccccc&amp;lightcolor=66cc00&amp;screencolor=000000&amp;logo=http%3A%2F%2Fgrou.ps%2Fincludes%2FphpThumb%2FphpThumb.php%3Fsrc%3D%2Fwysiwyg_files%2FGroupLogos%2Fsharewik%2F80.png%26w%3D30%26h%3D30&amp;skin=http://grou.ps/includes/embed/stylish.swf&amp;autostart=false" /><param name="src" value="http://grou.ps/includes/embed/player.swf" /><param name="allowfullscreen" value="true" /><embed type="application/x-shockwave-flash" width="640" height="385" src="http://grou.ps/includes/embed/player.swf" allowfullscreen="true" flashvars="file=http://s3.amazonaws.com/silo.grou.ps/wysiwyg_files/Videos/sharewik/20091211193737-bsuluxjlglgrplnkl.flv&amp;image=http://grou.ps/wysiwyg_files/Videos/sharewik/20091211193737-bsuluxjlglgrplnkl-big.jpg&amp;link=http://www.sharewik.com/videos/808795&amp;backcolor=000000&amp;frontcolor=cccccc&amp;lightcolor=66cc00&amp;screencolor=000000&amp;logo=http%3A%2F%2Fgrou.ps%2Fincludes%2FphpThumb%2FphpThumb.php%3Fsrc%3D%2Fwysiwyg_files%2FGroupLogos%2Fsharewik%2F80.png%26w%3D30%26h%3D30&amp;skin=http://grou.ps/includes/embed/stylish.swf&amp;autostart=false" bgcolor="#ffffff"></embed></object></p>
<p><em>[Amen. I'm going to make better sleep hygiene my new year's resolution. -Ed.]</em></p>
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		<title>Help Is Not Bling</title>
		<link>http://www.proofonline.org/blog/2009/12/08/help-is-not-bling/</link>
		<comments>http://www.proofonline.org/blog/2009/12/08/help-is-not-bling/#comments</comments>
		<pubDate>Tue, 08 Dec 2009 17:34:03 +0000</pubDate>
		<dc:creator>Douglas Faneuil</dc:creator>
				<category><![CDATA[Analysis]]></category>
		<category><![CDATA[Personal]]></category>
		<category><![CDATA[Anxiety]]></category>
		<category><![CDATA[Happiness]]></category>
		<category><![CDATA[Shrinks]]></category>
		<category><![CDATA[Talk Therapy]]></category>

		<guid isPermaLink="false">http://www.proofonline.org/blog/?p=269</guid>
		<description><![CDATA[When we see therapy as a luxury, what are we telling ourselves?]]></description>
			<content:encoded><![CDATA[<p>As I&#8217;ve said before, I spent nearly a decade in therapy. I shudder to think just how much it cost me. For most of us, I&#8217;d guess, money complicates our commitment to getting help. It forces us to compromise, to make sacrifices for our own benefit. Lots of people may be open to seeing a shrink – until they consider the monthly charges.</p>
<p>Therapy <em>is</em> expensive. Even on a sliding scale, one can expect to pay anywhere from $40-$75 per session (though better deals can be had). And the question of cost isn&#8217;t merely tricky because of tight funds. Who wants to pay for emotional support? I&#8217;m sure people grapple with this question all the time – I know I did. It took me years to address my misgivings about money with my therapist in an open and honest way.</p>
<p>In the end, I found that my reluctance to &#8220;shell out&#8221; cash for therapy had a lot to do with fears: of being self-involved, of being silly, of being wasteful. In other words, I questioned the relevancy of my own peace of mind.</p>
<p>For getting me to consider questions like that, therapy was worth every penny.</p>
<p><em>[PS: Here are some </em><a title="WalletPop" href="http://www.walletpop.com/blog/2009/12/07/finding-mental-health-help-on-a-budget/" target="_blank"><em>tips for care on a budget</em></a><em>. See also my comments </em><em><a title="The Huffington Post" href="http://www.huffingtonpost.com/douglas-faneuil/suicide-contagion-will-ma_b_155727.html" target="_blank">here</a></em><em><a title="The Huffington Post" href="http://www.huffingtonpost.com/douglas-faneuil/suicide-contagion-will-ma_b_155727.html" target="_blank"> (at bottom)</a></em><em>; the emergency room is always an option.]</em></p>
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		<item>
		<title>Maybe People Need to See Scars</title>
		<link>http://www.proofonline.org/blog/2009/11/16/maybe-people-need-to-see-scars/</link>
		<comments>http://www.proofonline.org/blog/2009/11/16/maybe-people-need-to-see-scars/#comments</comments>
		<pubDate>Mon, 16 Nov 2009 13:30:31 +0000</pubDate>
		<dc:creator>Douglas Faneuil</dc:creator>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Personal]]></category>
		<category><![CDATA[Anxiety]]></category>
		<category><![CDATA[Compassion]]></category>
		<category><![CDATA[PTSD]]></category>
		<category><![CDATA[Stigma]]></category>

		<guid isPermaLink="false">http://www.proofonline.org/blog/?p=242</guid>
		<description><![CDATA[A short, sobering radio piece about the invisible injuries of trauma.]]></description>
			<content:encoded><![CDATA[<p><a href="http://www.proofonline.org/blog/wp-content/uploads/2009/08/Quote.jpg"><img class="alignnone size-full wp-image-138" title="Quote" src="http://www.proofonline.org/blog/wp-content/uploads/2009/08/Quote.jpg" alt="Quote" width="80" height="63" /></a> I hate having to use disabled parking,&#8221; she said. &#8220;I see how people look at me, and I know what they&#8217;re thinking. &#8216;What makes that weirdo think she can park there?&#8217; Sometimes they ask me what I&#8217;m doing parked in one of those spaces.&#8221;</p>
<p>&#8220;What do you tell them?&#8221; I asked.</p>
<p>&#8220;I just walk away,&#8221; she said.</p>
<p>&#8220;Why don&#8217;t you tell them the truth?&#8221; I asked. &#8220;Why don&#8217;t you look them in the eye and say, &#8216;I&#8217;ve had to park in handicapped spaces since I got back from Iraq, because now I can&#8217;t walk past a row of cars without thinking that one of them is going to blow up in my face.&#8221;</p>
<p><a title="NPR" href="http://www.npr.org/templates/story/story.php?storyId=120350312" target="_blank">Listen to Story [3 min 19 sec]</a></p>
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		<title>A Parent&#8217;s Passionate Plea Against Hi-tech Bullying</title>
		<link>http://www.proofonline.org/blog/2009/08/27/a-parents-passionate-plea-against-hi-tech-bullying/</link>
		<comments>http://www.proofonline.org/blog/2009/08/27/a-parents-passionate-plea-against-hi-tech-bullying/#comments</comments>
		<pubDate>Thu, 27 Aug 2009 16:05:36 +0000</pubDate>
		<dc:creator>Douglas Faneuil</dc:creator>
				<category><![CDATA[Personal]]></category>
		<category><![CDATA[Bullying]]></category>
		<category><![CDATA[Depression]]></category>
		<category><![CDATA[Suicide]]></category>

		<guid isPermaLink="false">http://www.proofonline.org/blog/?p=164</guid>
		<description><![CDATA[Does the internet amplify bullying's torment? Will it lead to more suicides? One parent's very personal answer.]]></description>
			<content:encoded><![CDATA[<p><a href="http://www.proofonline.org/blog/wp-content/uploads/2009/08/Quote.jpg"><img class="alignnone size-full wp-image-138" title="Quote" src="http://www.proofonline.org/blog/wp-content/uploads/2009/08/Quote.jpg" alt="Quote" width="80" height="63" /></a> It’s one thing to be bullied and humiliated in front of a few kids. It’s one thing to feel rejection and have your heart crushed by a girl. But it has to be a totally different experience than a generation ago when these hurts and humiliations are now witnessed by a far larger, online adolescent audience. I believe bullying through technology has the effect of accelerating and amplifying the hurt to levels that will probably result in a rise in teen suicide rates. Recent statistics indicate that indeed teen suicide is on the rise again after many years of declining rates.</p>
<p>I don’t blame Ryan’s suicide on one single person or one single event. In the end, Ryan was suffering from depression. This is a form of mental illness that is brought on by biological and/or environmental factors&#8230; We have no doubt that bullying and cyber bullying were significant environmental factors that triggered Ryan’s depression. In the final analysis, we feel strongly that Ryan&#8217;s middle school was a toxic environment. We place accountability for this tragedy, first and foremost, on ourselves as his parents, but also on Ryan’s school administration, staff and the young people involved.</p>
<p>Nothing can ever bring back our Ryan. Nothing will ever heal our broken hearts. But we hope by sharing the personal details of our tremendous loss, another family will have been spared a lifelong sentence to this kind of pain. Please never forget Ryan&#8217;s story and the fragility of adolescence.</p>
<p><a title="ryanpatrickhalligan.org" href="http://www.ryanpatrickhalligan.org/" target="_blank">Read Full Article</a></p>
<p><em>[It's a subjective claim, of course – that hi-tech bullying is worse than an old-fashioned shove. Yet the argument has merits. Yes, electronic cruelty is more easily shared; worse than that, it's more easily accessed. Kids can dwell on schoolyard incidents, but with time they recede. Emails, instant messages and blog posts can be read and re-read. Long after the aggressors have moved on, these announcements lose none of their potency. -Ed.]</em></p>
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